In 2016, Kylie’s mom noticed she was fatigued and not acting like her usual self. After multiple doctor appointments, they could not find the cause of her deteriorating health. Kylie’s condition continued to worsen as she developed problems with her balance and started falling down more often. Eventually, the Center for Disease Control was able to help diagnose Kylie with a nervous system disorder. Since her diagnosis, Kylie has been faced with many developmental setbacks and delays in addition to losing sight in her right eye. She went from running to learning how to walk again.
Ongoing treatment for Kylie involves multiple clinical therapy appointments each week along with an individualized education plan. Three years after her initial infection & diagnosis, “she is still very careful walking outside because she is unsure how the ground is and how her balance will be” her mom said.
Kylie’s wish to go to Walt Disney World® Resort was rooted in her love of music and princesses. Kylie and her family had an incredible time together. The highlight of Kylie’s trip was the princess makeover at the Bibbidi Bobbidi Boutique where she dressed up like Cinderella and had her hair and makeup done. The magical transformation was complete with a dusting of fairy glitter.
Wishes can have proven physical and emotional benefits that can give children with critical illnesses a higher chance of survival. Since Kylie’s wish, her family has noticed a positive improvement. “Kylie's speech has picked up huge in just the few short weeks since we've had her trip,” said Kylie’s mom, Nicole.
During her wish, Kylie and her family were able to set aside their worries. “Make-A-Wish brings happiness back to families after a diagnosis. It was a glorious week of no therapy, an escape from our cold Minnesota winter and a great week with family,” Nicole said.
The Walt Disney Company, together with its subsidiaries, is a diversified worldwide entertainment company with operations in four business segments: Media Networks, Parks and Resorts, Studio Entertainment, and Consumer Products & Interactive Media. The Walt Disney Company's "Team of Heroes" community outreach and philanthropic efforts are dedicated to delivering comfort, happiness and inspiration for families around the world facing serious illness and recognizes it takes a team to make a significant impact.
Since the very first wish in 1980, Disney and Make-A-Wish® together have granted more than 130,000 life-changing wishes globally for children with critical illnesses. For more than 38 years, we’ve seen how a wish can play a critical role in a child’s treatment, replacing fear with confidence, sadness with joy, and anxiety with hope. This is why wishes matter so deeply to us, and to the children and the families around the world who experience them.