Karley was eight days old and her parents, Seth and Belinda, were faced with what they remember as the most difficult decision of their lives. They had just learned that the entire right side of Karley’s brain was covered by a tumor, causing her to have a seizure every few minutes. The choice was to let Karley continue to suffer through the constant seizures, or to remove the part of her brain covered by the tumor.
“It is the hardest thing we have ever had to do,” Belinda said. “The decisions we had to make on her behalf bring you to your knees.”
Over the years, Seth and Belinda have tried to calm Karley’s seizures with different medications, therapies, diets and more. However, even after the surgery, three-year-old Karley still averages 20 seizures a day and continues to grow tumors all over her body.
Despite her medical struggles, she remains happy and friendly. Karley especially finds joy in watching Mickey Mouse have adventures with his friends, inspiring her wish to go to Walt Disney World®
Karley recently spent a week exploring the Disney®
theme parks with her parents, and was overjoyed. “She was enamored by the characters and squealed with delight every time she saw them,” Belinda said. “Her happiness meter was off the chart.”
Karley’s wish also gave her the chance to spend time with her family and experience new things without feeling overpowered by her seizures. They finally had a memorable family vacation where they all could relax, shut off the realities of the daily fight with Karley’s critical illnesses, and simply be together.
"We all laughed a lot and cried happy tears,” Belinda said. “It was beyond anything we could have wished or expected for our wee family.”